Have you heard someone say about a medical issue “I really hope there IS something wrong”?
These aren’t the words of a hypochondriac – well, I guess they could be but that isn’t the route I am going ;-). They are the words of someone who has been through the system more times than not and they can’t bear to get another diagnosis like “we know there is something wrong but we can’t find anything so there is nothing we can do for you.”
And this isn’t even touching on the trips to emergency where they “pretend” to believe you but just leave you in a holding pattern for awhile then give you some pain medication and send you on your way thinking that is all you want.
This isn’t a rant. Not in the least.
What it is, though, is my realizing that I am not alone in this feeling that the medical system has given up on me. My dear hubby has a genetic blood disorder that his cousin and father have both been treated for and have gotten results. But Hubby was told his iron levels were not “toxic” enough to get the full genetic testing and treatment. This is even though his levels are above the recommended allowable amount. Why won’t they do it? We haven’t figured that out yet but it could simply be that the testing is expensive.
I have met so many people through blogging, FaceBook groups, and other social media who are the same. There are so many tweets, FB statuses, and blog posts saying that someone is getting tests, or seeing a new doctor, and are nervous because they don’t want something major to be wrong but they also don’t want it to be nothing.
Yesterday I went for a swallowing test regarding my throat difficulties. I have a very gravelly voice that tires quickly and I have trouble swallowing. The speech pathologist tried me with various barium coated foods and I coughed the items down like normal. She just called me to say that even slowing the scans down she could not see any problems and attributed it to my dry mouth.
Yes, that is a factor, but the sad truth is that while I was doing her very few and quick tests, the normal reaction never occurred. She stated that my muscles were strong and that this was proved that things were not aspirating into my lungs or choking me.
I believe her, and am so relieved it is not the aspirating problem my Dad went through. But it leaves me wondering “is this all in my throat or all in my head.”
Like I said, I am not ranting and as with everything else health related, I will use it to become stronger.
Let’s soldier on fellow Chronic Warriors!