My friend, Claire, has eloquently voiced my feelings and probably those of most people who deal with chronic pain and illness. Missing important events makes you feel even more isolated and invisible.
Lydia!
I am here,
Do you still see me?
My heart is beating
Within my broken shell.
A mind is playing
The words of a lifetime
The will is surviving
To write a legacy well.
Am I succeeding?
Am I still growing?
In spite of a body
That creaks with pain.
My mind is creating
My will is still flowing
To harness experience
For a generation to gain.
I may be unseen
Not always present,
But can you still see me?
Here I remain.
Claire Saul
Being Lydia! 