Chronic Compromises – Three months in Zombie Land

It is not lost on me that the last post I wrote here was on October 13, 2019. It talked about my doctor’s appointment where I finally found out one of the underlying reasons I have been so sick all my life is a very treatable diagnosis – a gamma globulin deficiency which was putting a strain on my immune system.

However, the first treatment turned into an almost 3-month nightmare. After the first couple of weekly infusions, I would be very fatigued and have an elevated headache the day of and one or two days after. Then I would feel much better and could get things accomplished.

Then I hit a brick wall.

  • I was sleeping all the time. Now that doesn’t sound so bad considering I have been an insomniac for years. However, when I say “all the time” I literally mean it. I missed our family Christmas on December 22, because I had another infection and I was in bed. Then I missed the real Christmas day except for maybe two hours.
  • I was nauseated all the time and whatever food I could get down would more often than not come back up.
  • My IBSD symptoms were also constant with cramps that went far beyond my pain threshold.
  • My house was a mess, even more than usual because I just couldn’t do anything. My hubby did the best he could but is working two jobs at the moment. I also currently have no care worker so that meant that not only was housework ignored, I didn’t have personal care as well.
  • My vertigo was worse than I think it has ever been and I fell or almost fell several times.
  • My “normal” headache became a horrid migraine which I endured most of the time.
  • I could barely spend 15 to 30 minutes on the computer before I was too tired or nothing made sense. It also took away my ability to write which is why my blog went silent after a couple of attempts to revive it.

While not all of this can be blamed on the immunoglobulin treatments, much of it can and other symptoms were triggered by the fact I was so run down.

The doctor was away, but my nurse, husband, and I decided that after 10 weeks something had to be done so I stopped. It took about 3 weeks for me to start feeling better. I then saw my doctor and she agreed with the nurse that we should try another product.

I had pretty much decided that I was not going to try another brand but my wonderful nurse let me know this other one was processed a little different.

So the next adventure to the land of better health starts anew.

I have had two infusions last week to a total of my normal 10 ml per week. This Friday I start doing it myself again and I am nervous, but so far so good. I have been exhausted every day up until today. I had a huge panic attack last night but it was probably intensified by the fact I had to take prednisone the last three days for a cough. I find that the pred elevates my moods and the infusion brings me down so they were working against each other. Today that was better as well.

I really hope that this treatment will work and eventually the coughs, infections, even allergies, might lessen or even go away altogether!

Lydia!

Photo by Nathan Wright on Unsplash

17 Replies to “Chronic Compromises – Three months in Zombie Land”

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