Reblog – Sleepless Night Strategies

My dear friend Sam has written about a topic I know all too well – sleepless nights. I know that everyone suffers from this once in a while; however, for the chronically ill it can be an endless string of nights.

I hope you enjoy this in-depth look at how to battle insomnia associated with pain and other chronic symptoms.

Lydia!

My Medical Musings

I can cope with most things about my disability. I’m not saying it’s easy. It’s far from easy but I have a toolkit of chronic disease management strategies, I’ve written about in the past, that help me on a daily basis……(My Chronic Disease Management Plan and Body Behaving Badly)

My pain is unrelenting during the day but I can find things to keep my mind occupied, to distract me as much as possible.

Those Early Hours Of The Morning Are Just Plain Hard

When pain overtakes my body in the early hours of the morning it’s just plain hard. I simply can’t sugarcoat night time pain with positive throw away lines.

Tossing and turning makes my legs and spine hurt even more than usual and I’m acutely aware I’m disturbing my husband. That’s the last thing I want to do. He needs his sleep. He does so much for…

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Reblog – Running on Empty – Do Not Pass “Go”

This is such a great post from my friend, Sam. It is very timely for me and much of the reason I haven’t posted in a while.

Lydia!

My Medical Musings

We all have moments in life when we hit a brick wall physically and perhaps mentally. It happens to the healthy and chronically ill alike.

I remember in my “healthier” life, I’d get to the end of my working week and I’d be exhausted. It was a normal exhaustion. The kind where you just needed a long hot shower, good food, an early night curled up in bed with a relaxing book or watching a brain numbing movie. By the next morning the world would seem a much better place.

Bouncing back was always a given. There was never a question in my mind I would not improve with a little rest and recreation. The next day, some fresh air, a long walk or a good shopping expedition, which were all doable back then despite feeling tired, were wonderful recovery therapy options.

That Was Then, This Is Now

Fast forward…

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Reblog – A Chronic Disease Management Plan – Do You Have One?

A very thorough and thoughtful insight into chronic illness management from my dear friend Sam Moss from “My Medical Musings”. This is good reading for both people with chronic illness and those that care for them.

Lydia!

My Medical Musings

At the start of a new week or month, I have a, “what’s on your calendar?” segment on my Facebook Forum, Medical Musings with Friends.

The idea is to take a quiet moment, to think about what lies ahead. We muse about how we are feeling, what we are concerned about, what we are excited about.

Appointments, celebrations and milestones are shared by members, so together we can support and encourage each other.

Sharing those thoughts in a safe place, like an online chronic illness group, is really cathartic. Writing down your thoughts and speaking about them, can help provide clarity in the midst of pain and disease.

Uncertainty often encompasses life at every turn when living with chronic disease. Having friends to turn to, online or otherwise, who are walking in your shoes, can provide so much comfort.

The Chronic Disease Curveball

Sometimes though, when our pain or disease…

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